Stepping Up, Pushing Limits, Breaking Barriers for CP and Beyond
What's my why?Â
I joined the Board of Directors of CPARF because I believe in its mission to change what's possible for people with CP and other disabilities. That matters for my son, Rohan, who has a disability.Â
Disability is a natural part of the human experience and it touches more lives than you might think. In the U.S., more than 61 million adults — that’s 1 in 4 of us — report having at least one disability. That means millions of our friends, family, coworkers, and neighbors face barriers that affect their independence, health, education, and careers.
Cerebral palsy (CP) is the most common lifelong physical disability, affecting 18 million people worldwide. Yet research into its causes and treatments is among the most underfunded in medicine. That’s where Cerebral Palsy Alliance Research Foundation (CPARF) comes in. They fund early-stage research that meets the needs of people with CP and related conditions at every age and stage of life. These discoveries make a real difference for individuals, families, and care teams.
Because CP is a dynamic diagnosis that affects each person differently, CPARF's programs have far-reaching impact. They help inform care for other disabilities, our aging population, and society as a whole. For example, CPARF is exploring better ways to manage chronic pain without opioids; work that could change how pain is treated for everyone.
There's an equal and urgent need for innovative solutions that can bridge gaps across all parts of life, helping everyone participate fully and vibrantly in their communities and pursue their dreams.
That’s where assistive technology (AT) comes in. As a powerful driver of social equity, human dignity and inclusion, AT can improve access to learning, working, connection, and healthcare. It helps people live more independently and engage fully in daily life. Through Remarkable US, CPARF's tech accelerator, they’re expanding access to AT and helping people with disabilities, chronic conditions, and age-related challenges live healthy, dignified lives.
Will you make a donation to support this work? Your gift is more than an act of generosity, it’s a powerful investment in research and technology that changes lives.
Together, we can help build a more inclusive and accessible world for everyone.
Amount raised for cerebral palsy and beyond
My Steps
Steps
382,130
My goal
300,000
Thank you to my supporters
Early Impact Donor
$1.02k
Anonymous
Early Impact Donor
$264
Cparf Board Of Directors
Early Impact Donor
$264
Beena Kamath-rayne
$108
Scott Briggs
Appreciate all that you do, Beena!
$106
Cparf Board Of Directors
Your donation has been matched by the CPARF Board of Directors! Thank you for joining us in creating a more accessible and inclusive world.
$106
Tim Thomas
Sorry, I was slow to respond. Best wishes for a successful fund drive.
$106
The Ding Family
Let’s go Beena! You know I’ll help you get those steps in anytime! 😉 You got this! — Erin 💜
$106
Mark Grimes
Keep going!
$106
Anonymous
$106
Cindy Bogley
Keep on Steppin' ! You are almost there!
$54
Jane Berg
From meeting you in fellowship to following you to today, you continue to awe me. A wonderful wife to Adam, mom to 3 fabulous boys, a champion for rare diseases and a leader in the field. Congratulations Beena!
$53
Charles Henle
$53
Jenny Christensen
Sending a big hug, Beena.
$53
Jpa
$53
Beena Kamath-rayne
$53
Stephanie Domain
$53
Kristine Young
Good luck!
$50
Michelle Olech Smith
You are always an inspiration!
$40
Beena Kamath-rayne
$26
Prigge Family
$26
Anonymous
$26
The Naddeo Family
$26
Cparf Board Of Directors
Your donation has been matched by the CPARF Board of Directors! Thank you for joining us in creating a more accessible and inclusive world.
Your donation has been matched by the CPARF Board of Directors! Thank you for joining us in creating a more accessible and inclusive world.